March 1st 24
TecnoXplora on La Sexta tells the story of 11 patients who have a total of 65 rare diseases.
10 of the patients, plus 2 mothers, have joined together to create AESCOV, with the aim of raising awareness about the diseases they suffer from.
February 29th
Marta and Mercedes know very well what it is like to live with Compressive Vascular Syndromes.
They demand research, resources, and a multidisciplinary reference unit, as these pathologies require it. The diagnosis was a relief, but at the same time, fear, fear of so much unknown.
February 29th 24
Yolanda Arruabarrena, president of AESCOV, is interviewed by Noticias de Navarra and RTVE Navarra.
Neighbor of Arroniz, where the AESCOV headquarters is located. Yolanda spent almost three decades with diagnoses that did not correspond to what she suffers from and in all that time, she was unable to find it in public healthcare. In Germany and privately, she was finally able to put a name to what was happening to her and find explanations for her symptoms. Thanks to a doctor from the USA and the SS pain unit. From her community, she found the strength to, together with 11 other women, create the Spanish Association of Vascular Syndromes. From where they demand diagnoses, knowledge and research.
February 26th 24
Adela, a member of AESCOV, and Ruth, a spokesperson for AESCOV, both affected by these pathologies, are interviewed on Telediario de Apunt.
They demand that these pathologies be recognized and valued as disabling, without so many difficulties. Both went through years and years of pilgrimage in private medicine. Adela, for her part, has suffered since adolescence and was not diagnosed until she turned 50. Not being believable entails added suffering.
Web blog Dr. Ricardo Gil
Dr. Ricardo Gil, internist at La Fe Hospital in Valencia, provides space on his website to speak and give voice to some of the patients with Compressive Vascular Syndromes.
Ana, Eva, Ana, Mailen, Yolanda, Judith, Eva, and Maica answer several questions about these rare pathologies, which affect 1% of the general population.
February 10th 24
Ruth Perales, a 38-year-old woman from Valencia, affected by multiple Compressive Vascular Syndromes.
From champion athlete, to the fight against the rare disease that compresses the arteries. She asks for greater visibility to an ailment that already has its first national association (AESCOV). “The disease is underdiagnosed. “There must be many people with unexplained symptoms.”
February 9th 24
Interview in the 20 Minutos newspaper with Lucía García, a 28-year-old woman from Ávila. Patient of these rare diseases and Treasurer of AESCOV.
Lucía explains the harsh reality of living with these pathologies. She says that it is very difficult for her to come to terms with all this at her age, “I had a life, a future… and for two years, my life has stopped”.
January 30th 24
Interview of Teresa Martín and her mother Teresa Carmona on Canal Sur de Granada.
Teresa Martín lives with several Compressive Vascular Syndromes that have severely affected her health and made her dependent at the age of 34. “We ask for at least one unit in Social Security dedicated to these syndromes, because as of today there isn't one and we have to resort to private healthcare”
January 23rd 24
Marta Hermosilla is interviewed by the 7TV Andalucía channel
She explains how difficult it is to live with these diseases and the main objective of AESCOV. “Marta does not give up and hopes that the authorities will get involved to improve the care of these patients, a daily struggle to be able to live without pain”
January 19th 24
Teresa Carmona, spokesperson for AESCOV, explains the need to create the association to give voice to patients and demand specialized units.
Teresa Carmona, spokesperson for AESCOV, explains in an interview with the Ideal de Granada newspaper the need to create the association to give voice to patients and demand specialized units in Compressive Vascular Syndromes. She also explains that the association is born with the aim of raising awareness about these rare diseases and improving the quality of life of those affected.
January 18th 24
Interview in the Sanlucar Información newspaper with Marta Hermosilla, a 22-year-old woman from Sanlúcar, Secretary of AESCOV and a patient with Compressive Vascular Syndromes.
Marta Hermosilla, a 22-year-old woman from Sanlúcar, Secretary of AESCOV and a patient with Compressive Vascular Syndromes, is interviewed in the Sanlucar Información newspaper to raise awareness about these rare diseases and explain the need to create the association to give voice to patients and demand specialized units.
January 11th 24
Ainhoa Prieto, a 26-year-old woman from Ponferrada, affected by these rare diseases and spokesperson for AESCOV, is interviewed on the Castilla y León television program, 8 Megazime Bierzo.
She talks about the importance of having a complete diagnosis, the lack of follow-up in public health, the few advances she sees in her hospital, the stigma of living with chronic diseases, the judgments we are subjected to, etc. “The feeling you have is one of complete abandonment,” “We deserve to live, being sick is not being dead.”
January 10th 24
Different media outlets in Granada announce the creation of AESCOV.
Teresa Carmona, from Granada, spokesperson for AESCOV and mother of Teresa Martín, a patient severely affected by Compressive Vascular Syndromes, is interviewed in various media outlets in Granada to shed light on the harsh reality experienced by patients affected by these rare diseases and to echo the creation of AESCOV, recently formed by 10 patients and 2 family members.
December 28th 23
FEDER announces the birth of AESCOV
FEDER announces on its website the “birth” of AESCOV, the Spanish Association of Compressive Vascular Syndromes. They explain that patients suffering from these pathologies live in a labyrinth of uncertainties due to how unknown they are. AESCOV is there to guide, advise, and improve the lives of those affected. Also, to disseminate and raise awareness among the medical community and the general population.